I am the kind of person that has a hard time with bad news. At first I freak but then I get used to it and just deal. Like when my Granny died. My uncle called me and I just lost it for about 10 minutes. Then I called my parents and sisters to let them know and headed over to the hospital to be with my family. It is much harder when its your babies.
Today at Louies 4 month checkup his Dr. mentioned craniosynostosis. It is where the plates of the head fuse together prematurely. She is sending us to the Hospital for an xray sometime in the next seven days. I googled it and I am a little scared he may have it. His head has the shape but its not as bad as the pics. But it is the shape. I am freaking out. It sucks to be one of my kids. Carmen has Neurofibramatosis most likely and now louie has craniosynostosis. If he has it he will have to have surgery on his skull. This just sucks. I feel like I did something wrong. Like I am putting my babies through this because I am selfish to want kids when I knew how jacked up I am. I have health problems but I never smoked or did drugs or even ever drank that much. And never any of those while I was preggo. It just sucks
Hey I got your comment on my blog, my email should be on this comment but it's laura_e_case at yahoo.
ReplyDeleteAlex did not have craniosynstosis. He had torticollis, which is where the neck muscles do not develop properly so he could only turn his head one direction. As a result, his head got flattened on one side. He wore a helmet to correct the head shape.
Anyway, feel free to email me even if you just want to vent! I know dealing with medical issues can be tough. With the boys' prematurity we were in and out of doctor's offices for the first couple of years until they caught up. And navigating insurance and worry WOW. It was some very tough times.